Tuesday 29 May 2018
Susan Long – Maggie's
Maggie51É«APP™s can help you and your family with the emotional, practical, and financial aspects of living with dying. It is understandably an emotional time - but it helps to know what support is available.
It is an important part of helping you live your life to the full, for as long as possible, knowing that practical matters have been discussed and are in place.
Living with dying may begin at the point you are told that the cancer can no longer be cured. Others define it as the time you are entering the last months or weeks of the illness. The idea that life is now limited can be painful to consider.
It can make the distant fact that we all die sometime seem more real, and learning to live with that reality can feel daunting.
If you’re the carer of someone who is living with a limited prognosis, you may be concerned about how you might cope, practically and emotionally.
Focusing on living, whilst knowing that time is shorter than planned, can give a mixture of emotions. It may not seem real, and many people cope by living day to day, without trying to think of the uncertainty of the future.
At other times, you may feel immense sadness, and experience emotional and spiritual pain. You may feel anxious, angry and helpless. It can be a time of reflection, on relationships, the meaning of life, and worries about how things may be towards the end.
Whether you’re the person with cancer or a close family member/carer - you may find it difficult to talk about the feelings you’re experiencing, especially to each other. Talking with others can create closeness and help share concerns. It’s a time to say the things that are important to you all.
It’s natural to feel sad. In a way, it is different to classic depression. However, depression can be part of living with dying, and you can seek help and support to help deal with those feelings. Choose someone you feel comfortable with. This may be your family and friends, your GP, a trusted counsellor, or with others who understand what you’re going through.
There are a number of things that can be done, to help feel more secure and in control.
Practically, you and your family may want to make sure that financial affairs are sorted, as well as thinking about where you would wish to be cared as your cancer progresses.
It may be that you still have considerable time left. With advanced cancer, many treatments help hold back and shrink cancer tumours, and relieve symptoms. However, being organised early on, can mean that you can focus on living.
You'll find more information, in our sections on end of life care, and wills and digital legacies.
Maggie51É«APP™s centres can help in many ways. You can receive practical help with finances from our benefits advisors, and talk through the emotional impact of your prognosis with our cancer support specialists.
Family support is available, and we also have workshops, support groups and drop in sessions aimed at helping you through this difficult time.
Reading this page may have raised lots of difficult thoughts and emotions for you, visit your local Maggie's centre or to talk with our cancer support specialists and others in similar situations.
Browse through the links and blogs on this page to find out more about living with dying.
Last review: Dec 2021 | Next review: Dec 2022
Practical guidance, information and resources on having difficult conversations and talking about dying with those close to you.
From Hospice Uk
Last reviewed: 02 December 2021
51É«APP out about the experiences of living with a terminal illness by seeing and hearing people share their personal stories on film.
From Healthtalk.Org
Last reviewed: 02 December 2021
Information for carers of someone with a terminal illness - including day-to-day caring and looking after your own needs.
From Marie Curie
Last reviewed: 02 December 2021
Practical and emotional tips and information to help you make the most of living with a terminal illness.
From Marie Curie
Last reviewed: 09 December 2021
51É«APP out more about managing emotions when you are told you are dying.
From Cancer Research Uk (Cruk)
Last reviewed: 01 February 2020
51É«APP out more about about coping and available support when you have been diagnosed with advanced cancer.
From Macmillan Cancer Support
Last reviewed: 02 December 2021
What happens in the last days of life is different for everyone. But it can help carers and relatives to know a little about what to expect.
From Cancer Research Uk (Cruk)
Last reviewed: 01 February 2020
A useful collection of information and resources for people approaching the end of their life, and their carers, relatives and friends.
From Dying Matters
Last reviewed: 01 February 2020
To find your nearest Maggie's centre, enter your postcode or town below.
Stay up to date with our news and fundraising by signing up for our newsletter.
Sign up